Queen of Sleep was diagnosed with narcolepsy in May 2007. 15 years after the onset of her first severe symptom, cataplexy.
In 2006 whilst on holiday, she was walking on a beautiful Greek island, fell asleep while the body continued to move forward… (Yes! Like a Zombie!) a friend got so worried she persuaded QoS to go to the doctor. Narcolepsy is not as uncommon as people seem to think. It is estimated that 1 in 2000 people suffer from narcolepsy yet it remains difficult to diagnose because society at large have a misconception of what narcolepsy really is…
Mention sleep difficulties to a GP and you are more likely to hear that you suffer from stress or depression than a serious chronic neurological condition. Within the next 10 years the medical professions awareness of sleep disorders have to improve! Just as it recently has with Chronic Fatigue and ME.
Queen of Sleep is trying to figure out the best way for her to manage a life with narcolepsy. She will post personal and scientific news, lifestyle advice and various other musings on sleep, sleep disorders and dreams. The blog is from a point of view of a narcoleptic but remember every narcoleptic is unique and what might be working and improving the condition for some might not at all be the same for others. It keeps QoS sane to know she is not insane – just sleep deprived. Recent research shows that there are about 25000 people with narcolepsy in the UK, of those 80% of those are undiagnosed. There are others – out there – and if she can be part of helping just one person take the first step towards a diagnosis and an improved lifestyle this blog has fulfilled its purpose.
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