Queen of Sleep

Living with narcolepsy: a personal journey

Posts Tagged ‘campaigning

“Sleepwalk With Me” Movie Raises Awareness about Sleep Disorders

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Check out Rem Runner’s Julie Flygare’s writing on a new film:

“Sleepwalk With Me” Movie Raises Awareness about Sleep Disorders.

Brilliant work on your new blog/website Julie. It looks great!


via “Sleepwalk With Me” Movie Raises Awareness about Sleep Disorders.


Written by Queen of Sleep

October 10, 2012 at 6:15 pm

Posted in Film

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Jane Brody on Narcolepsy – NYTimes.com

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I believe that National Sleep Week has just started across the pond. Excellent awareness spreading – introductory article “Jane Brody on Narcolepsy” in the New York Times today.

Jane Brody on Narcolepsy – NYTimes.com.

Written by Queen of Sleep

March 6, 2012 at 5:34 am

Posted in News

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Have Planned to Raise Awareness of Narcolepsy on Rare Disease Day 2012?

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It’s Rare Disease Day “time of Year” again please let them know what you have planned to raise awareness so they can share these activities with their members. There will also be a a supplement in an independent supplement and if you would would like copies just contact the admin team. RD contact stephen@raredisease.org.uk020 7704 3141

Following last year’s successful event, Royal Holloway University, London, will be holding another awareness raising event on Rare Disease Day. All the information about the event, including exhibiting opportunities, is available on the following website: http://www.rhul.ac.uk/rarediseaseday. You will also find information on what”s happening near you on the day!

Written by Queen of Sleep

January 23, 2012 at 11:00 am

Posted in Events

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Scrap NHS reforms, doctors tell Lords | Society | The Guardian

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More than 400 senior doctors and public health experts are calling on the House of Lords to throw out the government’s health and social care bill, saying it will do “irreparable harm to the NHS, to individual patients and to society as a whole”.

via Scrap NHS reforms, doctors tell Lords | Society | The Guardian.

Help by signing the 38 Degrees NHS petition!

It has already been signed by over 43 million! One of the ugliest words of the 20th century is Deregulation! The Tories love it and use it everyday! Anyone in doubt of signing the petition, watch the film/documentary “Sicko” by Michael Moore to see what happens to society and healthcare services after DEREGULATION

The BBC writes ” NHS Changes to cause irreparable harm”.  The Shadow Health Secretary John Healey says: “David Cameron is in denial, both about the damage his plans are doing to the NHS and the strength of opposition”


Written by Queen of Sleep

October 4, 2011 at 9:48 am

Wake Up (to Narcolepsy) Nashville

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Wake Up Narcolepsy is organising a music event named Wake Up Nashville to be held on the 29th of September 2011, 7-10pm. It’s a not for profit event and aims to raise awareness and research funding for narcolepsy.  You can get tickets and find out more on the Wake Up Narcolepsy Website and this Press release from PR Newswire.

Music Row and the Wake Up Narcolepsy Foundation have joined forces to give aspiring artists the chance of a lifetime at the first annual “Wake Up Nashville” event to be held September 29th at Nashville’s Country Music Hall of Fame & Museum.  Savannah Music Group has agreed to provide a review of songs submitted by aspiring artists as part of a fundraising event for Narcolepsy–a lifelong, disabling sleep disorder, affecting approximately 1 in every 2,000 people in North America or approximately 125,000-200,000 people in the U.S.

I wish Music Row and Wakeup Narcolepsy The Very Best of Luck! Hope you raise lots of funds and have a great evening!

Written by Queen of Sleep

September 15, 2011 at 1:38 pm

Posted in Events

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Nicole Jeray is Swinging for Sleep at the US LPGA Tour

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Learn more, donate and help improve awareness of narcolepsy: Nicole Jeray is Swinging for Sleep
More information about the US golfer:  Nicole Jeray Website and Narcolepsy Network

I wish you the best of luck for the coming season’s LPGA/LPGA tour(s) and an unbelievable amounts of birdies for “Swinging for Narcolepsy”! It’s such a clever and fun idea to help raise money for an incredibly worthy cause.

Queen of Sleep

Written by Queen of Sleep

July 30, 2011 at 10:34 am

Posted in Celebrities

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ATOS HEALTHCARE Recruitment Day Picket – 14th of June 2011

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Sometimes easy to think ” What is going on in the world! Why is everything so difficult? Why isn’t anybody listening? Is it just me who can’t manage? Why does the Job Centre lose everything I send them? Why does it seems like there is a ghost in the admin-machine, regularly sending me the wrong letters and sometimes not any at all? Why is it that when I try to fill in the ATOS medical form not a single question is applicable to a neurological disorder? Why do I have to chase up committees, secretaries and call centre staff on a regular basis? Rant! Rant! Rant! All these thoughts race around in my mind and suddenly I look up at a stand outside the local Argos. It has two rather pale people in their mid 40’s-50’s distributing flyers, providing information on ‘Being a Carer’. I get a leaflet and read: ATOS Healthcare Recruitment Day Picket!  At first I am a little confused as to the meaning of the headline. The word recruitment and picket doesn’t seem to gel in my mind but then I get it. Two local charities are picketing outside the recruitment office of ATOS warning potential new employees of ATOS “about their despicable” reputation. It is obviously also an opportunity to voice a rejection of the NHS reforms currently being under scrutiny. The leaflet says that the financial crisis is being used as an excuse to drive through the ConDem government’s ideological attack on the welfare state. ATOS’s multi-million contract with the government  is to help achieve this.

The picket will take place on the 14th of June: 5pm – 8pm at Atos Origin, 4 Triton Square, Regent’s Place, NW1

For more information on the charities: IHOOP, DPAC  and many many more…

Written by Queen of Sleep

June 14, 2011 at 4:16 pm