Queen of Sleep

Living with narcolepsy: a personal journey

UK health officials probe possible flu jab link to narcolepsy in children | Society | The Guardian

with 2 comments

It seems to take years to investigate the possible impact of Pandemrix. A little bit too long if you asked me. People’s lives have been affected.

UK health officials probe possible flu jab link to narcolepsy in children | Society | The Guardian.

Written by Queen of Sleep

March 30, 2012 at 9:09 am

Posted in News

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2 Responses

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  1. I think that this is interesting for a number of reasons. I am suspicious of the tendency to blame vaccinations for other health issues in the wake of the dTap/autism debacle, but I generally think that more research is a good thing, so I am glad that this link is being pursued. While the risk of developing narcolepsy from the H1N1 jab is extremely low, if there is a real correlation, it could offer some insight into the underlying causes of narcolepsy. My only worry is that, as was the case with dTap, people (particularly parents) will choose not to vaccinate before all the facts are in, this putting not only themselves and their children but many others at risk.


    March 30, 2012 at 11:19 am

  2. I am an RN who had to retire early due to narcolepsy and I can tell you that I stopped getting the flu vaccine because I no longer trust our governments research into these matters. I think the concern is very valid.
    Read at link below for a “night in the life” of a narcoleptic with sleep apnea. (and I frankly believe the sleep apnea is a result of the narcolepsy because undiagnosed and untreated narcolepsy produces fatigue so severe, you become a slug, gain weight, and develop airway problems). Sadly the diagnostic process requires addressing the apnea first then waiting at least 6 months to do a repeat test and look for the narcolepsy only if apnea treatment does’t relieve the fatigue. http://servehiminthewaiting.wordpress.com/2012/03/13/711/


    March 30, 2012 at 12:15 pm

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