Queen of Sleep

Living with narcolepsy: a personal journey

Reorganisation of blog, Spring Conference and Rare Disease Day

leave a comment »

Dear fellow Queen of Sleep Snoozers,

Apologies for the recent changes and disarray of information on the blog. It will be sorted shortly to contain one page of practical links and one page of cultural (art, cinema, books) links in addition to the blog.

I will attend Narcolepsy UK’s spring conference in Sheffield on April the 2nd. If you are planning to go and think you recognise me – come and say hello and I will give you a Queen of Sleep badge. The conference is free to attend if you are a registered with Narcolepsy UK (and that is free too!). Register here.

Rare Disease Day 2011 is getting nearer. On the 28th, Rare Disease UK will be holding four parliamentary receptions across the UK to bring all those with an interest in rare diseases together to highlight the issue to politicians. They will also be launching a report outlining recommendations for a strategy for rare diseases, cumulating a year and a half of work gathering evidence. The receptions will take place in the:

Scottish Parliament – 22nd February 6:30pm – 8:30pm, Westminster – 28th February 4pm-6pm
Northern Ireland Assembly – 3rd March 12pm-2pm, Welsh Assembly – 16th March 12pm-2pm

There is still time to get involved! Interested? Click here. The membership with RD UK is free! Join here

Written by Queen of Sleep

February 25, 2011 at 11:36 pm

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: