Queen of Sleep

Living with narcolepsy: a personal journey

New Beginnings – Daily Management of Narcolepsy

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Perovskia atriplicifolia

Perovskia atriplicifolia


Last September, I started a course in Horticulture, which runs over a period of a year. 1 day, a week from 9-4pm.

I was/am trying to find a job that will suit me in the future and I have also enjoyed gardening and plants. I like the practical element of gardening as you use your body and mind whilst working. I also like the fact that there is always the option to work outside, in general, it has the potential to be a very varied job. Obviously, there are repetitive element or job roles too but you find them in every job.

I thought, studying 1 day a week would be gentle beginning of a path back to work. Although, I have made several adjustments to my lifestyle, increased my medication, I still cannot keep awake during the day. I know that most narcoleptics plan in naps but I would really like to be able to stay awake. When I loose attention and zone out – it’s during those important moments during classes when we are taught/shown passively  and then I miraculously wake up during a practical or if we are going out botanising At the moment, I fall asleep, about 5 times during the day. It’s only for short periods so I should be able to eliminate them. I know now that If got a regular job 9-4pm, I would not be able to keep it. I have to improve my health even further.  Or, I could work 6 hour shifts? Or perhaps increase the medication further? I have learnt over the past 6 months that the timing of my medication intake is crucial. I have an appointment with my specialist in February so I will discuss these issues with him.


Written by Queen of Sleep

January 25, 2011 at 3:58 pm

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