Queen of Sleep

Living with narcolepsy: a personal journey

Rare Disease Day 2011

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In 38 days on the 28th of February 2011 Rare Disease Day in Europe will take place. If you want to  get involved in supporting this important day and event go to RareDiseaseday.org’s website and read and download appropriate materials here.

EURORDIS and National Alliances for rare diseases are inviting all patient organisations, caregivers, researchers, public authorities and companies developing orphan products to join in this observance. The purpose is to focus attention on rare diseases, the challenges encountered by those affected, and the inequalities that rare disease patients face every day. Want to organise an awareness-raising event? Contact your National Alliance.

You’re a European organisation and your country doesn’t have a National Alliance or a country organiser? You can still get involved, contact EURORDIS at: rarediseaseday@eurordis.org
Want to show your support of this special Day? Add your name to the list of ‘Friends of Rare Disease Day’.

Written by Queen of Sleep

January 20, 2011 at 11:01 am

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