Queen of Sleep

Living with narcolepsy: a personal journey

Damian managed to get Xyrem

leave a comment »

As you might have  noticed I have been looking for the best videos documenting narcolepsy on Youtube.  By accident I came across Damian who I met at a UKAN conference last year. He has made a really good video explaining what it is like to live with narcolepsy and also outlined the struggle he had to go through to get Xyrem approved by his PCT. The video was made in 2008/July, I met Damian September 2009. He said that Xyrem had changed his life. He had started to volunteer and was planning on slowly moving into paid work. It is amazing how life changing – the right medication can be.

Written by Queen of Sleep

May 1, 2010 at 10:57 pm

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: