Queen of Sleep

Living with narcolepsy: a personal journey

Damian managed to get Xyrem

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As you might have  noticed I have been looking for the best videos documenting narcolepsy on Youtube.  By accident I came across Damian who I met at a UKAN conference last year. He has made a really good video explaining what it is like to live with narcolepsy and also outlined the struggle he had to go through to get Xyrem approved by his PCT. The video was made in 2008/July, I met Damian September 2009. He said that Xyrem had changed his life. He had started to volunteer and was planning on slowly moving into paid work. It is amazing how life changing – the right medication can be.

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Written by Queen of Sleep

May 1, 2010 at 10:57 pm

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