Queen of Sleep

Living with narcolepsy: a personal journey

Hibernation

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I have not been writing for a while but now that spring is almost here I will make more of an effort to document progress. The darkness really affects my wellbeing. I have tried to go out 9-12 in the mornings. Apparently, It is supposed to help regulate the circadian rhythms and the internal body clock. I can’t say I have noticed any difference but perhaps I need to go out every day at that time. However, most of the time, my sleep during the night is so restless that I need the morning hours to catch up. I am also working on pushing my lunch nap back to earlier in the morning to merge it with my night sleep. I wish I could sleep soundly for at least one night. It has been a long time now.
I am not sure if I mentioned that my long battle with nicotine is finally over. Last November I quit for good. There is no going back ever and I feel so much better for it. Smoking put unneccessary stresses on my body. It was hard to quit because I had used smoking as one of my many crutches to gain immediate energy for so many years.
Around New Years I decided that I might as well give up drinking too. Not that I drank much anyway but it affected my nervous system quite badly. After a few glasses of wine of beer – the following day I would be really shaky. If I ever feel like I would like a drink (before I start my new medication – if it will be approved by my primary care trust) I think that spirits would be my choice. They contain less toxins than wine and Beer is out of the question since it is made out of wheat. I found out years ago that I have a slight wheat intolerance. I have not really found it difficult to stop – because I get really tired or feel a bit ill after a glass of wine or beer. Socially, it has been ok too but I have started to noticed just much others drink. Then again the UK and London specifically has a very strong alcohol culture with its pubs and traditions.
Two days ago I subsequently decided to cut out wheat from my diet to see if it affected my health. I have spoken to friends who have given it up and researched the topic online and they all agree that you/I will go through a withdrawal period for 3-5 days.
During day 1, I suffered headaches. Day 2, I felt very emotional and I missed my family very much. Today, I went shopping with a friend and the wheat is everywhere. In bakeries, coffee shops, restaurants,,I even smell it in the street. I love wheat, I love baking cakes, European bread, croissants etc. As I am writing this I can imagine the intoxicating smell wandering up my nostrils teasing my brain’s pleasure centres. I miss it but I have found some alternatives that are yummy too. Nairn’s Oat cakes and dark German sunflower seed bread are my favorites at the moment. Hopefully there is life after wheat!

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Written by Queen of Sleep

February 25, 2010 at 2:44 am

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